Approved:  March 21, 2006   

Minutes of the House Health and Services Committee

The meeting was called to order by Chairman Jim Morrison at 1:30 P.M. on March 20, 2006, in Room 526-S of the Capitol.

All members were present except Representatives Landwehr, Watkins, Bethell, and Miller, all of whom were excused.

Committee staff present:

Melissa Calderwood, Kansas Legislative Research Department
Mary Galligan, Kansas Legislative Research Department
Renae Jefferies, Office of the Revisor of Statutes
Gary Deeter, Committee Secretary

 Conferees appearing before the committee:

            Jan Buckman, Fetal Alcohol Symdrome Clinic, Emporia
            Ed Olson, President, Lyme Association of Greater Kansas City
            Jeanne Gawdun, Senior Lobbyist, Kansas for Life
            Rocky Nichols, Executive Director, Disability Rights Center of Kansas
            Shannon Jones, Executive Director, Statewide Independent Living Council of Kansas
            Senator David Haley

Others attending:
See attached list (not available on the electronic copy).

Jan Buckman, former Chief of Rehabilitation Services, Kansas Social and Rehabilitation Services (SRS) who presently works with the Fetal Alcohol Syndrome Clinic in Emporia, reviewed the effects of fetal alcohol syndrome, which may include  memory deficits, limited abstract thinking, confused receptive language, poor social skills, erratic problem-solving skills, and explosive emotional episodes. (Attachment 1)  She said becoming aware of the source of such behavior and working to change the environment, not the conduct, provide the best strategies for stability and a more productive life. 

Ed Olson, President, Lyme Association of Greater Kansas City, presented information about Lyme disease. (Attachment 2)    He reviewed information about Lyme disease and the work of the Kansas City Lyme Association, noting that its most important function is the hotline to answer questions from concerned citizens.  He commented that Lyme disease is often misdiagnosed because it displays symptoms similar to many other ailments.  He emphasized the need for education and prompt treatment, stating that four Kansans have died from the disease.   He cited legislation in Rhode Island that addresses some of the needs associated with Lyme disease. 
           
The Chair opened the hearing on SB 528.

Jeanne Gawdun, Senior Lobbyist, Kansas for Life, spoke as a proponent.  (Attachment 3)  She said the bill expands some statistical information about post-22-week abortion reporting and reporting of infants born alive during an abortion procedure, commenting that the bill clarifies reasons reported for abortion of viable babies and noting that more specific information regarding mental health and fetal anomalies will provide more nearly accurate statistics regarding abortions.  She cited several instances where information was vague, referenced a chart regarding abortion statistics, (Attachment 4), and provided a sample termination of pregnancy report, (Attachment 5) and a sample birth certificate.   (Attachment 6)       

Judy Smith, State Director, Concerned Women for America of Kansas, provided written testimony as a proponent.  (Attachment 7)

Rocky Nichols, Executive Director, Disability Rights Center of Kansas, testified as a neutral party, commenting that the disability community had concerns about the potential discriminatory effects of the bill.  (Attachment 8)  He urged the committee to consider two questions before making judgments about the bill:  (1) Why does the bill only require data regarding specific disabilities, which, if the bill were to become law, would be the only Kansas statute referencing disabilities?  and, (2) Can the Kansas Department of Health and Environment (KDHE) provide assurances that the privacy of those listed will be absolutely protected?  He commented that he could not find such assurances in the bill, noting that cross-tabulation of data could identify individuals even if no names were used.  He recommended that the bill specify the use of raw data collected in the aggregate statewide.    

Senator David Haley spoke as an opponent of the bill.  (Attachment 9)  He said the bill is intended primarily for use as an election issue, commenting that the bill is duplicitous, confusing, and is merely a tool to harass abortion providers.  He complained about the perceived surreptitious introduction of the bill in the Senate committee and urged members to follow time-tested procedures in dealing with the bill.  Answering questions, he said the estimated additional cost of $25 per late-term abortion might be a burden on some low-income women and serves only to chip away at a women’s right to choose.  Regarding the Kansas Attorney General’s attempt to investigate health records of abortion providers, he replied he was unaware of what effect this bill would have.

Shannon Jones, Executive Director, Statewide Independent Living Council of Kansas, said her organization seeks to promote the civil rights of disabled individuals.  (Attachment 10)   She said her primary concern focused on lines 33-42 of page 1, which singles out women with disabilities, unaccountably placing in statute a certain class of individuals.  She recommended striking the offensive language. 

The following provided written testimony in opposition to the bill:  Ami Hyten, Assistant Executive Director, Topeka Independent Living Resource Center, (Attachment 11); Anne-Marie Hughey, Legislative and Policy Advocate, Southeast Kansas Independent Living Resource Center, (Attachment 12); Kathy Lobb, Legislative Liaison, Self-Advocate Coalition of Kansas, (Attachment 13); Elizabeth Hatcher, Psychiatrist, Topeka, (Attachment 14); Robbin Palmer, Ph.D, Genetic Counselor, Reno, NV, (Attachment 15); and Kerrie Bacon, Kansas Commission on Disability Concerns.  (Attachment 16)

Members posed several questions to conferees.  Ms. Jones said if the designated lines were struck, she would not object to the bill.  Responding to another question, she added another line (page 3, line 19) she said should be struck.  Dr. Lorne Phillips, Director, Bureau of Vital Statistics, Division of Health, KDHE, answered that the bill refers to two different forms already in use—the termination of pregnancy report and the (live) birth certificate.  A member commented that the present forms are adequate without requiring the proposed additions.  To another question, he said there is no concept in current law about an attempted abortion resulting in a live birth.  Mr. Nichols, responding to a question that if the bill identifies a disparate number of those with disabilities as having abortions and thus offers protection for them rather than discriminating against them, said his only purpose was to raise the question regarding discrimination.  When a member cited a statistic that those mentally deficient are more likely to be abused (25% more boys, 40% more girls), Mr. Nichols said that if the bill is used as a basis for collecting data, the committee should first answer the two questions he posed.  Ms. Gawdun replied that the intent of the bill was to create parity on the reporting forms and to assure that the federal born-alive law is being followed, the latter which is not clear at present because the reporting is incomplete.  Ms. Jones said she had no knowledge whether the disabled have more or fewer abortions than the general populace.

A fiscal note was included for members.  (Attachment 17)

The hearing on SB 528 was closed. 

The meeting was adjourned at 3:31 p.m.  The next meeting is scheduled for Tuesday, March 21, 2006.